25 July, 2017
On Monday, the parents of terminally ill British infant, Charlie Gard, abandoned the legal bid to take their son to the United States for experimental care after being presented with dire new medical tests.
For several months, Charlie's parents and the Great Ormond Street Hospital have been in a legal battle over what is in the child's best interest.
She said "a whole lot of time has been wasted" and said she hoped Charlie's life would not be in vain.
The child's parents raised $1.8 million to bring him to the U.S. They had previously said that if the money couldn't go towards Charlie's treatment, it would be donated to help other children with similar genetic conditions.
Their hopes came to an end at the weekend, after Michio Hirano, the United States neurologist who had offered an experimental drug therapy, finally accepted an invitation that had been open since Christmas to come to London and see Charlie.
Chris Gard, the boy's father, said they are "truly devastated" and blamed the length of the court case for preventing them securing the treatment.
"Some cases are about legal principles. some cases are about legal facts and expert opinions. some cases are also about time, and sadly this case is now about time", Armstrong said.
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Charlie has a rare genetic condition that causes continued muscle weakness and severe brain damage.
The case of 11-month-old Charlie Gard has gripped the entire world.
Judge Nicholas Francis had scheduled a two-day hearing to consider fresh evidence after Dr. Michio Hirano, an American neurology expert from Columbia Medical Center in NY, came to London to examine the child. "Even now, Charlie shows physical responses to stressors that some of those treating him interpret as pain and when two global experts assessed him last week, they believed that they elicited a pain response", said the Gosh statement on Monday.
Mary MacLeod, chairman of Great Ormond Street Hospital, said in a statement, "We fully understand that there is intense public interest, and that emotions run high". Yet had the parents been allowed to use the private resources they had accumulated and exercised their choice to get Charlie that last chance, his life may have turned out better.
The chairwoman of Great Ormond Street Hospital, where Charlie is being cared for, said the hospital has contacted police over threats received by its staff over the case.
Charlie Gard's devastated parents have told their son they are "so sorry we could not save you".
Chris and Connie will now put all their efforts into creating a foundation, where Charlie's voice will "continue to be heard".